What we do


Robbie’s Rainbow supports families who have a child aged 0-18 years of age living with Inflammatory Bowel Disease (IBD) and need access to critical treatments, procedures and care.

Today there are an estimated 6,000 children and teens in Canada living with IBD who rely on some form of drug treatment to stay in remission. Many of these children and their families are able to manage the cost of treatments through private health insurance, compassionate funding or special programs, but some are not so fortunate and are in a ‘crisis situation’.

Robbie’s Rainbow ensures that any child in need, receive access to a treatment, procedure or care deemed crucial by their healthcare provider.

Information

We respond to individual calls, letters, and emails requesting information on pediatric inflammatory bowel disease (IBD). Contact Robbie’s Rainbow for literature on IBD, and visit our About section to learn more.

Referrals

Robbie’s Rainbow does not provide referrals of any kind for healthcare specialists.

Assistance

All Robbie’s Rainbow patient assistance is provided at the request of a social worker, healthcare provider and administered through a health institution. Patients will never receive direct financial support through our organization.

Support we provide


Biologic Treatments

Are living antibodies, designed to target, bind and block specific proteins responsible for inflammation in IBD.

Cost: $2,000-$4,000/dosage

Drug Monitoring Tests

Monitors the amount of drug in the body and any anti-drug antibodies, important factors in disease management.

Cost: $280.00/test

Labratory & Clinical

Technical and scientific assessment of laboratory tests. Assessments and clinical review of patient’s health status

Cost: $500/visit

Antibiotics

Used to treat disease-related intestinal infections such as Clostridium difficile (C. diff), abscesses, fistulas, Pouchitis and used to manage inflammation or complications of IBD.

Cost: $1,000/week

Enteral Nutrition

Patient receives exclusive nutrition (EN) using a special liquid formula administered by nasogastric (nose to stomach) tube or drinking orally. By not eating any food, the bowel is able to rest and heal. Treatment typically last 8 – 10 weeks.

Cost: $1,000/month

Ostomy supplies

Bags, pouches, clips, rings and skin wafers are essential supplies required for young patients who have undergone Ileostomy or colostomy surgery. This is a medical procedure where a portion of the digestive tract is relocated to a surgical opening outside of the abdomen. Waste is then collected using the supplies mentioned above.

Cost: $300/month